Tag: baby loss

Little Townhouse on Helmsdale

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Five years ago today we closed on our first house.

We knew Joanna was on her way, though we didn’t know it was her specifically. After an early loss a few months before, we were still holding our breaths in hope and anticipation when we signed the papers and took possession of the keys.

Walking into OUR home that night, we had such big dreams, but not just for us, but for this baby. I was already planning the nursery before we moved one thing into the space.

Back in June of this year, as we drove over the Virginia state line, into familiar but distant territory, I cried. For all the things that I miss. For all of the people. For all of the convenience. For all of the memories made in our first seven years of marriage.

But mostly I cried for her; for how I felt closer to her again. For how her home and the hospital she was born were so close to me again. For how that place had brought healing, and friends who’ve walked the same road. For how she was there, how she physically existed there. For how she held my heart there through pregnancy after loss and through bringing home her baby brother into a space that was still hers, too.

That home will forever hold a piece of my heart. I loved it so. I love her so. I miss it. I miss her, painfully, still. How can it be five years already?

I am glad that she is here too, in our hearts. In our memories.

Little Townhouse on Helmsdale, thank you. xo

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Even Though

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Time moves so quickly, passing by like a raging river, though most days it feels like the trickle of a small brook. Somehow we have already made it four years — four years today since we found out Joanna had passed at 25w5d and tomorrow is her birthday. Four years. It feels as if the days have gone so slowly and yet I can still remember the physical pain like yesterday. I can remember what it felt like to hold her. To touch her skin. To look at her face. To sing her special lullaby to her.

But even with all the passage of time, I don’t have to remember the emotional pain. The heartbreak. The ache for her, so much that it physically hurts. These are the things we still feel now. The effects of great loss, the toll of great love.

But even four years later, I can still say I would do it all again. I would suffer every type of pain to carry her for nearly 26 weeks. To hold her in my arms again, even for just those few short moments of time. To sing to her. I would let my heart break a million times over to be with her.

We are so blessed with our beautiful rainbow babies, both who are here because she was here. Because she showed us what love is, made us parents, and made us brave.

But we will never not miss her. We will never not wish we could hold her in our arms and not just our hearts.

It’s a break up song, but I have recently come to love the song Break Up in the End by Cole Swindell. I cry every time I hear it because I feel the same about Joanna. I would do it all over, even though I know how it ends.

If you read this post and you think of it, please do something kind in honor of our girl tomorrow. A simple random act of kindness. A donation to a charity you love, or to our Facebook birthday fundraiser for Emma’s Footprints.

We love you, Joanna! Happy birthday!

Even if I knew you’d be the one that got away
I’d still go back and get you
Even if I knew you’d be my best and worst mistake
Oh, I’d still make it with you
Over and over, again and again
Even though we break up in the end

Dear Joanna (8.6.18)

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Dear Joanna:

It’s been a long time since I have written to you. I think it’s because I spend a lot of time thinking of you, talking to your little brother about you, and looking – peacefully – at your tree in our backyard while I wash dishes each night. I love you more than ever, and I miss you just as much.

Today is an interesting day for us. Today I am 25 weeks and 6 days pregnant with your baby sister. I think you know her, I think you and God probably told her about her family before her little soul made her way to earth with us. I think she’s been picked to stay with us forever, but I’m still on edge as to what the results will be.

But today, at 25 weeks and 6 days, today is the day in your pregnancy that you were born, still. That means that tomorrow, we’ve made it farther with your sister than we did with you. I think this is supposed to bring me relief, especially since she is our second rainbow, but considering all of the factors, I am still afraid. I heard you can’t be brave unless you’re afraid. But I wish I didn’t have to be either. I still wish I had you here with me.

I find myself thinking less about what this baby girl will look like, and more about if you’d have looked like her, like the little girl she will hopefully grow into. Because she is hopefully going to have the chance to grow up, and maybe in some fleeting moments we will see you. But she is not you. You cannot be replaced. We are excited for her arrival, for her place in our family. She’s already stolen our hearts (and took us by surprise). We are not a family of four, but of five. We are not a family with “one of each” but a family with two girls and one boy.

This pregnancy has revealed more clearly what might have happened to you. The weight of that still gets to me, that maybe you could have actually been saved. That maybe there were measures we could have taken to keep my body from hurting you. I have learned to let go of guilt in the last 3.5 years, guilt that I did that to you, that I couldn’t keep you safe. This pregnancy has brought it back in waves, the grief and the guilt mix. I feel that so much of your sister’s safety is on my shoulders. Yes, any one of several random problems could still happen, but the biggest issues can be solved by me, now that we know. It’s a lot of weight to carry. But I am trying to remember, different pregnancy (even though it feels so similar), different baby (even though she’s a girl, too), different outcome (even though it can be hard to imagine her in my arms, alive).

Little one, I love you so. I miss you and wish so much I could hold you again. I know I will some day. And tonight, I am just cherishing the little kicks and punches your sister is giving me…and her first hiccups that I felt earlier today. I’m glad on this night specifically I can know that she is OK in there.

I love you with all my heart, J.

xoxo,

Mom

 

 

Joanna’s Gifts – The Third Birthday

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Tomorrow is Joanna’s third birthday… It’s incredible how fast the time moves, and how much our love for her grows, even though we aren’t holding her in our arms anymore.

It’s hard to imagine what Christmas could have been like with an almost three-year-old and an almost 18-month-old. Leo loved pulling paper off of his gifts, but didn’t quite connect that the unwrapping meant he was getting a new toy to play with. I know Joanna at nearly three would have had the most magical Christmas. I don’t know what she would be into at three, but maybe unicorns and a Doc McStuffins play set. It’s not hard to see those aspects of the holiday, it’s hard to imagine because it still hurts.

It still hurts that she is not here. It still hurts so much. When I go to get my nails done and there’s a little girl getting her first manicure about Joanna’s age. When we go to weddings and dads give toasts and dance with their daughters and moms help brides into their dresses. When I listen to the radio and hear songs written to daughters, or children in general.

When I think of all the moments I will miss of her life, when I think of the small moment in time when she was here with me, in my belly, in my arms. It all hurts.

Even three years out. I have a feeling the hurt won’t ever go away, even old wounds still ache. And so this will too. Every reminder will bring on a little pain, a little longing for that little girl, my firstborn. Every time I hear her name belonging to another, the hole in my heart will open, raw, all over again.

The truth is that time can heal you in some ways. I wouldn’t say time heals all wounds, no. But, it can make you see how strong you are. It can make you see how much love you are capable of. It can show you how love can even be multiplied and how loss is not the end. Time can’t heal your heart after a child is taken from your life, because that wound will always burn; but time can help you move forward, find purpose, use your pain to help others.

I wish I could say that I see the reasons why Joanna died – you know the “everything happens for a reason” reason. But in three years I have not found one and I don’t think there is one. I don’t think there’s a purpose for babies to die and I don’t see it as “God’s plan.” I don’t think everything happens for a reason. I don’t. But I think through the struggle and through the pain, Joanna’s life and death have helped me to be a better person.

From being able to share my story to help others to having more empathy in almost any situation. I have learned the value of time–how there is never enough to spend with the ones you love and to be more present in those moments. To laugh even in hard times but also to cry when I feel like it and let my feelings out so they can be processed and understood.

I’m still learning to love myself, to not feel guilty about Joanna’s death, to not be angry at myself. These are harder to accept but I am making an effort each day.

Bill gave me a necklace for Christmas that I have been wanting; it says “And if not, He is still good.” And in all things, I still believe He is good. In good times and bad times and in long lives and those cut too short. In my life — even if He doesn’t save me from the fire, He is still good. I know three years ago today when I found out Joanna had died, in that exact moment, God was still good. When I held my beautiful girl in my arms, He was so good! Even leaving the hospital empty-armed — still good. Nothing that can happen in this life can change who He is, which is good.

And when I was pregnant with Leo I had the words “But if not…” written on a post it, stuck to my computer at work where I saw it all day long. It was my motto, my mantra. To remember that God was in this with me and even if I didn’t get to bring Leo home, He would still be good.

Because Joanna was good. Short life. But good life. She will always be the one who made me a mama. That’s good. She will be my firstborn. That’s good. She was perfect. That’s good. She was mine. That’s good. She will always be with me. That’s good.

Happy birthday tomorrow to my girl. We love and miss you so much!

xo

If you’d like to help us celebrate, check out our Facebook event. We are having a random acts of kindness day and would love you to participate and share what you do in J’s honor.

Dear Joanna (4.4.17)

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Dear Joanna,

It’s me. Your mom. It’s been a while since I have written. I’m sitting here in our Virginia house, snuggling your little brother on the kitchen floor while we have our carpets cleaned. 

I’m not really sure what to say right now, but I know there is something in here to tell you. First off, we are moving. We are moving home to PA, close to family. We miss them and want Leo to know them, like we know our grandparents. I wonder, if your arrival had been different, would we have moved back to PA sooner? Would we still be here, listening to the whir of the carpet cleaner, you playing next to me while Leo sleeps?  

I needed to tell you we are moving because somehow I feel like leaving this home is like leaving you. Somehow leaving here, though you are not here, feels like leaving you behind. All of my memories of you are here. Finding out you were on your way just as we bought this house. Immediately planning the nursery once we moved in, but having it come to an abrupt and heartbreaking stop. A birthday with you in this house. A Thanksgiving with you in this house. An annual tree decorating party with you in this house. You were here.

And after you died, this was still your home. We planted your winterberry out back and we celebrated what should have been your due date. I slept on the floor in the nursery because it made me feel closer to you. We celebrated two of your birthdays here and created Joanna’s Gifts boxes in your memory for other loss families. We ate cupcakes and released sky lanterns. We sent you a balloon on Pregnancy and Infant Loss Awareness Day last October. 

Then, we found out Leo was coming. This baby promised to us, our rainbow, was on his way. And we began working on the nursery again. The one that was gender neutral, the one that was for you. And now for him. Together. A place you share, a place you both physically exist. And now we are leaving–you will never physically share a space with your brother again. We will move into a new home and he will get a new room, maybe dinosaurs or superheroes. And you will not share it, or get your own new room. 

We will take all the pieces of the nursery and create a similar space, continuing the elephant theme. We will still hang your footprint and handprint with Leo’s and any other baby who comes along. And though pieces of you will be in the room, you won’t have had a physical presence. 

We will take your winterberry. Your memory boxes and ashes are already awaiting us in PA at Gramma and Grampa’s house. That’s where to find us. 

I guess just as you are physically gone, so we will be gone from this place as well. But we do know you are in our hearts. You are ours forever. You are our firstborn and we will see you again someday. 

Last night I rocked your brother for the last time in the nursery. It was hard, but also I was thankful knowing I would rock him and put him to bed for many, many more nights. I so miss that I couldn’t do that with you. Today I looked into the empty nursery and all I saw were walls painted with so much love, but I also saw the dreams that were dashed when you left. I feel blessed to have your brother to dream with. Tomorrow we will leave. Our first house. Your first house. But your new home is the best of homes…the home where Jesus holds you until we can wrap our arms around you again. We just wish you could be with us now. 

Sweet girl. Until we see you again, sending so much love heavenward. 

xoxo,

Mom

When She Leaves First

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Debbie Reynolds died today.

I enjoy my fair share of celebrity news, but don’t normally comment much, especially on celebrity deaths. My thought process is that they are people, and people live and die. Some people live a lot shorter lives, and die.

Like Joanna. She lived 25 weeks and a few days and then she was gone – 2 years ago tomorrow.

But the reason I am commenting on Debbie Reynolds’ passing is because she died one day after her daughter. You are not supposed to die after your children. They say you can die of a broken heart – and yes, I am hearing Reynolds might have had a stroke – but what if, even though supposedly Carrie Fisher’s relationship with Reynolds was difficult – what if she died because that’s just how stressful and painful and awful it is to know you’re going to bury your baby (even if she was 60)?

Tomorrow we plan to celebrate Joanna’s life, mark another year since she left us. Sometimes I wonder how I’ve survived, a heart broken, deeply wounded, but still beating. The effect of losing your child is so great, most people don’t realize how hard it really is. How you planned a life together, planned a life where you never had to be apart, a life where your time was only severed by your death, not your baby’s. And then it’s all gone in an instant. And even though you might survive it, and you might even go on to have more children, your life is always marked by “before she died” and “after” – and you aren’t the same.

You see, it doesn’t matter how long of a life was lived, 60 years, or 6 months inside of you – that life had meaning and an impact on yours. You’re forever changed, forever missing a piece of you.

 

On Milestones

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One of my loss mom friends and I talk often about all of these milestones that we pass, that were supposed to be happy and are now often sad.

The 29th of each month marks another month passing without Joanna.

Each holiday that passes that should have been Joanna’s first (Christmas, New Years, Easter, etc.).

Her due date – today. This is the second April 7th we have landed on that Joanna is not here. It’s hard to imagine that, had she been growing strong and healthy, she would have been a Spring baby and we’d be celebrating “1” today (ish).

There are a few other milestones passed this week, in addition to Joanna’s due date.

On Tuesday, I officially hit 26 weeks pregnant. I’ve never made it that far before. It’s a big deal – the anxiety and fear and worry over making it past the point at which our loss of Joanna happened has been overwhelming. Now that I am two days past, I still feel anxious. I’m in new territory. I know so many things could still happen. I also know I see at least one doctor a week at this point and they have all said that baby is doing great, along with my weight gain, swelling, blood pressure, etc.

It’s reassuring to hear that. Scary still, yes, because we have heard so many stories of so many ways babies can pass, at so many different times during a pregnancy. We are just hoping and praying this baby is our “rainbow” baby – for all the rainbows I have seen in the last year.

Pregnancy after loss (PAL) is really hard. Every little thing makes me nervous that something could be wrong. I count down the days until my next appointment so I can be reassured by seeing baby dancing on the sonogram screen – as if the kicks to the ribs and bladder aren’t enough.

Being pregnant with this baby has made me miss Joanna even more, with each day that passes. How I wish she were here too, to feel these kicks and to see her baby sibling growing inside and to meet the baby this summer. If only they could both be here.

And finally, the last milestone for this month – the 2nd anniversary of our miscarriage is coming up on April 25. It’s hard to believe it’s been two years already! I’m sure little baby Bean and Joanna are playing together in Heaven right now.

But there are other milestones – the ones that remind me of God’s grace and His mercy in these circumstances. Every day is a milestone. Every day I get out of bed and I put myself together and I survive. That’s a milestone. We made it another 24 hours. How we miss Joanna. How we wish we could hold her again. How I wish I knew what she would look like as a little one year old. But in all things, God is still good.

The Quietest Easter

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Last Easter we were 3.5 months out from having said “see you later” to Joanna. We went to Pennsylvania to be with family, rather than be alone in the house. It was a nice weekend away, with good food and wonderful family to visit. There was noise to drown out the sad, empty cries of our hearts.

This year, we were home. Our first Easter, just to two of us, without Joanna. I couldn’t help thinking of how different it should be as I hashtagged a photo with “dinner for two” – when it should have been three. We should have a nearly one year old. Maybe she would be walking. Maybe she would be enjoying all sorts of new foods, or maybe she would be a picky eater. Maybe we’d be out “searching” for Easter eggs in the backyard instead of looking at Joanna’s winterberry tree and wishing she were here. We’d be surrounded by little girl screams and giggles and hugs and kisses. The delightful sounds of childhood filling our home and our yard. Filling our hearts.

Instead we were home. Quiet. I made a little Easter dinner, Bill took a long nap in the afternoon since he has worked the night before.

I found myself reflecting more deeply this year on Easter itself. Thinking of Jesus’ sacrifice and how He made a way for us all to go to Heaven. In the quiet of Sunday, I realized how much more grateful I am for this sacrifice now. To know that Joanna has only known Heaven, that she will not know what heartbreak is, that Jesus made a way for her little soul to go straight to Him. That because of His sacrifice, I know I’ll be seeing J again someday.

Though quiet represents a lot of pain and sadness for me, for Joanna, quiet means peace and joy and praise and walks down golden streets and being held by her Creator, while we are not there to hold her.

Maybe this will be our last quiet Easter, but I’m grateful for the time I spent thinking of Joanna and for the peace that covers my heart when I think of seeing her again someday.

Triggers

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It’s been quite some time since I have written. I would like to say it’s because we aren’t sad anymore, but that’s not true. Not a day goes by that we don’t think of and miss Joanna. It’s hard to believe it’s been more than 14 months since we held J, and just a few weeks ago was the first anniversary of my blogging about our baby girl and our journey through pregnancy loss, stillbirth, grief and healing.

And a lot of healing has happened. Late in the summer of 2015 my blog posts started to taper off. I think this is because, though I always have a lot to say, especially to Joanna, I was getting to a place where words weren’t what I needed to continue healing. Just living was the thing – training for my first 5K, celebrating my birthday, going on vacation with my husband and best friends. Getting out and doing things I’ve wanted or needed to, and not feeling scared to make them happen. Not being afraid of triggers and not being afraid to tell my story.

That is not to say life is not without triggers. In living more fully and celebrating my own life, as a way to honor J, I have found many things that bring me to a stop. That immediately draw tears. That make my heart drop. I don’t think there will ever come a day when certain things won’t make me sad and miss Joanna.

Recently Bill and I went to a pet adoption event just for fun, after doing some furniture shopping. We were having fun petting the little puppies, holding them, playing with them. Then we walked to another area in the store where the older dogs were hanging out, hoping for someone to adopt them. We ran into a pretty lab/retriever mix. She was golden and so sweet, but seemed pretty antsy. That’s when the handler told me that she was feeling a little sad because her puppies were taken away that day.

I looked down and walked away so fast. The tears were immediately in my eyes. Of course that dog was sad, and not just a little. Her babies were gone and she wasn’t going to see them again. I know things are different in the animal world, but I have a dog and I know he understands a lot more than I think. I know he has feelings that have been hurt and he expresses joy and happiness. So I know that mama dog was heartbroken over her pups being taken. It hurt my heart and took me back to the day I left the hospital without my baby.

It’s so crazy how quickly something can trigger me. But at the same time, it’s not. It’s going to be a lifetime of grieving – of parenting a child who is not here. There is no “getting over” it. Healing comes slowly, but even when we are feeling better, there will be weeks, days and moments of deep, deep grief that will take over. No matter what happens in our lives from here on out, we won’t forget, we won’t stop loving, we will always miss our Joanna. No one can replace her. No one can take away the special place she holds in our hearts, and in our family.

God, in His mercy and grace, has started to heal my heart, and in His power and compassion, He holds me when I feel broken all over again.

Reflections

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A year ago today marked four weeks since I gave birth to Joanna, still, at just shy of 26 weeks.

That first month was so hard, as are the months that continue to come, season by season, without Joanna.

But if you had told me at the four-week mark that eventually I would not feel physical pain every day from the emptiness, I would never have believed you.

Around the two-month mark, you might have said that I would not cry every day from the sadness, but it seemed such an unlikely scenario.

At three months, I heard that I would not be angry forever from the injustice, that I would truly laugh again and feel pure joy. But it seemed like the feelings would be my daily routine.

If you had told me at the four-month mark that a time would come when happy memories of my pregnancy and Joanna’s birth would come more often than the sad days, I would have certainly rolled my eyes and pulled the covers back over my head.

Five months in you might have said, it will get easier, and I would have cried oceans of tears, telling you it hurt too badly to believe that could ever be true.

At six months, when people asked if I had any children, I didn’t know how to respond. Practice makes perfect, you might have said. I would have said there is no way to tell my story to people who don’t understand.

At seven, eight, nine months, as babies were born who weren’t even conceived before Joanna’s birthday, bitterness tried to make its way into the cracks of my heart. I fought to keep those cracks filled with my love for Joanna.

And you know? If you had told me I would laugh and celebrate and smile and love, and so sweetly ache for my baby on Joanna’s first birthday, and not hide under a blanket and cry, I absolutely would have laughed in your face.

But this year has gone by, and these changes have come. Tears do come less often, not because we miss her less, but because we have found our “new normal” – we have figured out how to live without Joanna in our arms, though always in our hearts.

I have found the right way to share with strangers the story of my daughter, a way that brings peace to my heart and a smile to my lips – a story where my happy memories of her outweigh the sad memories of her death.

There are days I still ache, days where my chest hurts, that physical manifestation of my broken heart. But I know that love and hope and healing are filling the cracks, and I know Joanna is happy we are healing.