Dear Joanna (5.15.15)

Dear Joanna:

Last night we went to support group. At first, I thought I wouldn’t like going. But in February we attended our first meeting and we listened to everyone’s stories. Each story hurt our hearts, just as our own story hurt. But being in that room with people who truly understand how we feel was good for us. I cried as I shared the story of you. Your daddy cried too.

Even so, we went back.

Last night we went for our 4th time. Now, there are familiar faces each week, friends even. People know our names and they know your name, Joanna. They know our joys and our sorrows and they know how special you are to us. They get it.

A few new people came last night. We heard new perspectives and new insights. New stories with fresh wounds. Older stories, still raw a year, 2 years, or more, later.

Joanna, I want to tell you about something that really resonated with me. I have been thinking about the future, about how it will feel to be pregnant again, how I will feel. I don’t mean the will-I-have-morning-sickness feeling…I mean the “me” feeling. Will I be scared? Anxious? All of the above? Yes, that’s likely.

Your daddy and I have considered what we will do – announce the pregnancy with just as much enthusiasm at 13 weeks as with you? Or wait a little longer, 20 weeks or more, to share the news with the hopes that the farther along we are the more likely your little brother or sister will arrive safely.

Lately, I have been leaning toward earlier, feeling like EVERY baby deserves to be celebrated and loved from the moment the two pink (or blue) lines appear. Every one. Joanna, we may have lost you, but we had so much joy with you. I want that for your siblings. Yet, it’s hard for me to imagine being excited and happy when all I can see in the future is fear and anxiety.

This is what stuck out last night. One of the ladies at support group is pregnant with twins after losing her son to placental abruption at full term. She said that you can live in fear, or you can soak in the moments and take all the joy. If something happens during your subsequent pregnancy, what will you have left? Only the fear? Or will you have the joyful moments your child brought to you throughout pregnancy?

It meant a lot to hear that, Joanna, because she is living it! She can, during her subsequent pregnancy after loss, find joy. Celebrate. Love. Connect. Be her best. All for those double rainbow babies. It’s one thing to say it and think you can do it – move beyond the fear and into hope and happiness. It’s another story for me to see it happening. To see that truth come to life. I’m so glad to witness, in the flesh, that it’s possible.

Possible to cherish and celebrate after loss. Someday, I’m going to get to do that.

Joy comes in the morning!

Love you, Joanna.

XOXO,

Mom

P.S. Thanks for the double rainbow at the house the other day. We really enjoyed it!

For Mother’s Day

In all honesty, I didn’t want to blog about Mother’s Day. I thought about putting something on Facebook, but that didn’t seem quite the right thing for me. I’m not having a bad Mother’s Day, but certainly not the Mother’s Day I was expecting. I was going to blog tomorrow, a reflection on the day, but felt that I couldn’t let the day slip away without doing for myself what I have wanted others to do for me today: acknowledge myself as a mom.

I am a mom. And though I may not get to parent Joanna, I get to love her, forever. She is mine and I will always be her mom. She gave that gift to me and I am so thankful. Though I can’t walk down the hall and scoop her out of her crib and cuddle her, though I will never see her take her first steps, go off to kindergarten, graduate high school, dance at her wedding, I will always have some precious moments with her.

The first time I got morning sickness.

The first time I craved avocado.

The first time I felt her move, and the second and the third, and even the last, because that was special too.

The times we heard her heartbeat and saw her little face.

Those 12 hours of labor, and though she arrived silently, she was mine. She was ours.

She made me a mom. I am proud of that. I am proud of me.

And I am proud of all the other mamas out there.

I am proud of the mamas who have their babies to hold tight. Don’t let go.

I am proud of the mamas-to-be. Be vigilant and cherish your pregnancy.

I am proud of the mamas in waiting. The ones who know deep in their hearts they will have children some day. The ones who have just started trying to have a family, and those who have been waiting, hoping, aching and praying for years. Don’t give up.

I am proud of the mamas of babies who’ve grown and moved away. Especially proud of mine – without her, I could not have been the mom I needed to be for Joanna.

And I am proud of the baby-loss mamas. Whether you’ve lost your baby to miscarriage, stillbirth, or sometime after they were born, you’ll always be a mom. Your arms may be empty, but your heart can still be full in remembering your baby(ies). It may take a while. I’m not there myself. But I know it can happen and I know it will happen.

So, mamas of all types, I hope you were good to yourselves today. I hope your families were good to you, too. No matter where you are in your motherhood journey, you are a mom, you deserve to know it and you deserve to celebrate it.

Happy Mother’s Day!
XOXO,
Carol

P.S. I wasn’t sure I would ever share this picture publicly. It’s a moment of both great joy and great sorrow (and messy hair, but who cares, right?). Because it’s Mother’s Day, and one of the few pictures of my little family, today is the day. Joanna, I am so proud to be your mama, today and every day.

joanna

When You Just Need A Hug

As many of you (oh, so sweet and wonderful) readers of mine know, Wednesday marked four months since losing Joanna. You also probably know that I have been in California for a work trip.

The down side of this is that I was not home with Bill on this four-month mark. No hugs from Joanna’s daddy to squeeze my heart with comfort and tell me it’s OK to cry and it’s OK to be sad and it’s OK to miss her. I also miss my puppy, who of course knows when I am feeling down.

On the plus side, I love the marketing team as it stands today, especially the fact that I call the girls on the team friends. We’ve had a fantastic time this week, margaritas and Mexican food in Laguna Woods, putting our (OK, just mine) toes in the sand and the Pacific Ocean, handmade Italian dishes in Carlsbad during our team dinner, and the most gorgeous California sunset I’ve seen to date while walking Manhattan Beach. Not to mention spending an evening with a great new friend having a pizza dinner in my hotel room watching Chopped.

It’s been a great week. But smack-dab in the middle was that day, April 29. Some people let the day come and go without thinking of Joanna, while others sent a little message or posted on my Facebook wall. It really can help a heart heal to know how much others love and care for you, and how much they loved your child, even if she arrived silently and they didn’t get to hold her or see her pretty, little face.

But there is one problem. As a human being, sometimes you just need a hug. No text, email, call – can replace a hug. Away from home all week, I was struggling through the day Wednesday. I was happy on the outside. But on the inside, I was hurting and missing my baby. It’s true! I just needed a hug – a physical acknowledgement of my pain, and a reminder that I’m surviving.

Instead, I went back to my hotel room and tried to sleep.

But today, this great thing happened. My wonderful, sweet friend took some time to get away for a few minutes, just the two of us. She bought me a coffee and we caught up with each other between meetings. As always, she listened to what I had to say, and I knew she really cared. Just like I knew she cared four months ago when Joanna died. Just like I knew she cared when I felt like I couldn’t be at work on my first few days back and she called to check in on me. And you know what? She hugged me today. Whether or not she knew how much I needed it, it happened. And I am so grateful.

So today, I am finding God’s grace in co-workers, co-workers I can call friends. Who care about what is going on in my life, who take the time to make sure I’m doing OK, who laugh with me, who make work enjoyable and fun (even on the stressful days). Gracious friends who take good care of me, with kind words and comforting hugs.

I am going to miss being in the same city as you (“amazing, wonderful, perfect”) ladies.

See you tomorrow, East Coast!

Manhattan Beach

Dear Joanna (4.27.15)

Dear Joanna,

I am flying to California as I write this. Actually, I’m probably already over California right now.

The last time I came here I had you! You were a tiny little bean, just six weeks along. During the trip all I wanted to eat was guacamole. Plus, I started to get morning sickness, but only in the evenings.

Maybe the best part of my trip was that by the end of it, I was the “most pregnant” I had ever been. Coming home from California and being almost seven weeks was a relief. It was a milestone for us, since before you, we lost a baby right around the six-week mark. You were still with us. You were still growing.

Sometimes I wonder, when there is another baby…will we feel relief when we make it to 26 weeks? 25 weeks and 5 days was when we found out you had gone to heaven already. I think there won’t be any relief until your brother or sister is in our arms, crying, full of life!

If you had not left us, I would not be going to California today. But somehow this trip feels like the start of a new journey. One that will be scary but one that your dad and I are willing to make.  I’m glad you’ll be with us every step, in our hearts and minds.

Love you, baby girl!

Mom

Dear Joanna (4.21.15)

Dear Joanna,

I wanted to pop in and say that I miss you.

I was driving to work from the dentist today and burst into tears. I know…it’s still happening. And I’m not ashamed. My tears for you will always come, and they will always feel right, even though not having you feels so wrong.

Why did I cry, you ask? Because as I was listening to the radio, a song came on called What Hurts the Most. I am sure you heard it before, from inside my belly. It’s about a break up, a great heart ache. About a man who so wishes he had said what he was feeling and acted upon his love for his girlfriend. But he didn’t and she left. He lost her forever. Though you didn’t leave by choice and though I never neglected to tell you how much I love you, I can relate.

I can take a few tears now and then and just let ’em out.
I’m not afraid to cry every once in a while
even though going on with you gone still upsets me.
There are days every now and again I pretend I’m ok,
but that’s not what gets me.
What hurts the most was being so close,
and having so much to say…
And never knowing what could have been.

I also cried because the last time I was at the dentist there was so much joy! I was finally telling everyone that I was expecting you. I scheduled my 6-month cleaning and was already celebrating that you would be here, that I would have a little baby to bring along with me to the dentist, all cute and adorable in your little car seat.

But it was not to be, Joanna.

My arms felt so empty on Saturday morning that I held Elephant close and swayed in the sunlight for a while. I wish you were here, cuddling Elephant, and that I could cuddle you in the sunlight. Sweet girl, you’re one of my greatest loves, and losing you is my greatest hurt – what hurts the most.

Hugs and kisses, beautiful!

xoxo,

Mom

Pretty in Pink [A Celebration of Life]

These past few days I have had a lot of trouble thinking about what to say, which is why I haven’t posted in a while. So here goes nothing…

Easter weekend was pretty hard for me. I was surrounded by so many of the people I love. It was a beautiful weekend of joy and celebration. But at the same time, it was devastating. Thinking that I probably shouldn’t even have been up in PA, considering that Joanna could have been born early. Or, better yet, that she was growing and healthy and happy right up until 40 weeks: Tuesday. Which would have meant I couldn’t have traveled so far away for Easter. Those are the things I think of when I’m alone, when I’m in bed trying to fall asleep, when I’m driving in my car… If only things were different.

Speaking of 40 weeks, Tuesday on my due date we had a celebration of Joanna’s life. We decided to plant a winterberry bush in our backyard. It will get bright red berries in December (her birthday) and will have bright green leaves most of the rest of the year (that come out in Spring, around her due date). Prior to the evening of our celebration, we invited friends and family from afar to write “Dear Joanna” letters on tags that I designed and printed on light pink card stock. Then, local friends (and my mom and Aunt Barb) came over for a potluck dinner Tuesday. April 7. We hung all the mailed-in tags and the friends who could attend the celebration filled out tags and hung them as well.

We had wanted to plant the winterberry and hang the tags outside, but the weather was not cooperating. I was pretty upset at first. Something came out of my mouth in the car on my way home from work that sounded like, “God, You get to have Joanna, can’t I at least have nice weather for our memorial?” And it came out in a loud, angry yell. It was certainly a low moment for me, though anger is a common emotion for me to feel when I think about losing Joanna. Regardless, I felt better after saying what I was truly feeling, and a bit of peace washed over me, like God was answering me, “You carry Joanna in your heart, you celebrate her life every day, the weather can’t change that, or how much you love her.” And so I went home, put the tree in the house like a Christmas tree and we celebrated. It was beautiful. The pink really popped, plus we had pink tulips and pink balloons.

Love Mom

I feel so blessed to have so many family members and friends who joined us in celebrating, near and far. I am so grateful for their thoughts and prayers and support during the past three months. There is no doubt in my mind how loved Joanna was and still is – and no doubt that Bill and I are loved, as well.

Proud Parents

A final thought…I feel like making it to my due date and surviving this time is a huge relief to me. Every week I thought about how far along I would be in my pregnancy and what that would mean for us. And now, I am not counting down to the day when my baby would NOT be born. It has passed. I am here. Breathing. Sure, I will think of all those milestones we are missing as the rest of the Spring babies are born. I will be happy and sad all at the same time to see new pictures of those babies on Facebook and even meet some of them once their parents bring them home and are settled. But now, we’ve made it. Now, we look back with love and sorrow all at once. But now we also look forward – and try to hold on to hope that someday there will be a baby brother or sister for Joanna. We look in our hearts and we find her there.

Dear Joanna (4.3.15)

Dear Joanna,

I want to tell you something. Just know it is not your fault. It’s not mine either. Though it’s always hard to believe that. 

I am feeling left behind. 

Sometimes I feel bad feeling that way. I know I have friends who wish they were married and feel left behind. And I have friends who wish they could buy a house and feel left behind. Of course I have friends who don’t have children yet and probably feel left behind as well.

Still, I feel left behind because I don’t have you. All of your dad’s siblings have children. My brother has a son. Many of my friends who married after me, or are not married at all, are having children. Or even just friends who are younger than me. I thought it was my turn – our turn. Your dad and me.

We thought we were going to join the new parent club when you were born. While we did join a parent club, it’s not quite the same. Being part of the bereaved parent club…it’s one no one wants to join.

We thought you would be our Rainbow Baby, the baby who is born after a loss. But now, you’re another Glory Baby. Another precious life not living here with us, but in Heaven. 

But speaking of rainbows, your dad and I saw a rainbow today on our way home to Pennsylvania. We saw a few rainbows the summer we found out we were pregnant with you! This was the first I’ve seen since you left us and I want to believe it was sent our way to remind us you’re with Jesus on this weekend where we celebrate Him and His resurrection and our salvation.

Maybe, it’s even a sign to remind me, on the weekend before your due date, that there is hope of another baby – a sibling for you. Our Rainbow Baby. 

This weekend will soon be over. Your due date will soon pass. But I will still feel left behind… Behind you, already in Heaven. Someday, we will meet again. 

I love you, sweet girl!

Love,

Mom

  

Calendar Moments

Today after work I let the dog out, as usual. I stood in the fading sun at the sliding glass door and watched him run around. I think, someday, he would have loved running around with Joanna.

When he ran around the corner out of sight, I moved over and looked at the calendar. I picked up my Sharpie pen and started adding. “Bill to Rochester” for a week. “Carol to SoCal” for a week. “Mom and Dad Overnight” one weekend in April. “Emily’s Bridal Shower,” “Amber in Town”.

As I added these things to the calendar I realized that the big trips I was writing down would not be happening if Joanna had been born [alive] when she was due, April 7. Bill couldn’t have left for Rochester a week after her birth. I would not be going to California for work, since I wouldn’t even be working.

The smaller visits would still have happened. My parents would still have come visit, and even Amber would still be coming! But they would have been coming to meet and visit with Joanna. I am happy they are still coming to see me, I’m sad that Joanna is not here to snuggle and shower with love and kisses.

While I am going to look forward to California for the next few weeks, and I am sure I will have a good time with my co-workers and hopefully see the Pacific again, I will be wishing for a different scenario. While Bill is in Rochester I will be wishing he were with me, with us – our little family of three (ok, four, counting Heinz).

The calendar reminds us that our lives do continue on, they must. We cannot stop time; change; things out of our control. We can only remember what has been, and try to look at the future with hope.

It’s still easier to just not look.

A Breath of Fresh Air

Jane Austen once wrote, “Friendship is certainly the finest balm for the pangs of disappointed love.”

While she was writing of romantic love, I have found a lot of meaning to this quote in the disappointment that is pregnancy loss, that is a mother losing her child.

When we miscarried our first baby, I cried for days. How could we have waited so long for a child and struggled with fertility nearly two years only to be disappointed days later? I was devastated. I was hurting. I felt alone.

But in my time of pain and sorrow, friends who had experienced the same kind of loss were there for me. From my mom, to my sister-in-law, to friends far and wide who had lost one, two, or more pregnancies. Their kind words and encouragement and shared experiences helped to ease the heartache and bring some hope back into my life.

When we miraculously conceived Joanna only 3 months later it seemed like she was going to be our rainbow baby. Flash forward nearly 26 weeks. When a doctor tells you, “There’s no heartbeat,” it literally breaks your heart. I say literally because you feel it inside your chest ripping in two and then it crashes to the pit of your stomach into smaller pieces. Heartbreak really does physically manifest as chest pain, among other things.

I cried every day for months. I still cry most days. But the outpouring of love and support and prayers from our friends and family has been what helps us get by. One day at a time. Or more accurately, one moment at a time.

Over the weekend I had the chance to visit a friend. A dear, sweet friend. It had been a long time since I had seen her; we hadn’t seen each other the whole time I was pregnant. She has not experienced the same kind of loss, but this deep, precious connection that we have had for so many years – it was the balm I needed. Her sweet cards and consistent phone calls and texts have been coming to me on the days I have needed them most. Yet there is no comparison to seeing a dear friend in person when your heart is aching. There is nothing like a familiar hug from one whose heart is as broken as yours, for you. Friendship is, itself, a healer. A ray of light and breath of fresh air in a dark and saddened place. A glimmer of hope when all feels lost.

I praise God in all things, even the most devastating times. And I thank Him daily for the blessing of friendship, the balm of the brokenhearted.

Dear Joanna (3.23.15)

Dear Joanna,

I went home to PA to visit family and friends this weekend. You would have liked it there. The weather was pretty mild, though of course it snowed on the first day of spring. It would have been fun to take you there in the winter to go sled riding. And in the spring to celebrate Easter and your cousin Shay’s birthday. Summer would have been fun, going to Waterford Days and stopping for a nice visit at your Pap’s camp so your daddy could show you off to his family. The fall is great too – cool temperatures and beautiful leaves. You would have grown up looking forward to those visits up north, just as your dad and I look forward to them.

This trip was pretty special. I got to meet little baby Annabelle. She is only a few weeks old and her mama, Erin, and I liked to share baby bump photos while we were both pregnant. I took her some breakfast and we got to share labor and delivery stories, though there was but one baby to hold. I wish there were two; I wish one was you. For most of the visit I just looked – I watched as AB lounged quietly while her mom and I talked. I looked on as Erin breastfed her, changed her diaper, redressed her. Toward the end of my visit I decided to hold her. She was much heavier than you, but still felt so tiny. She was warm and smelled like babies smell, so sweet and clean. And as I cuddled her on my chest, I wished for you.

Joanna, no one can replace you or fill this hole. Holding AB was priceless, so special, even healing. It helped me remember that all babies are precious and all babies are miracles, even if they aren’t mine. But there is just one you. So someday when your dad and I decide that we’ll have another baby, we know that your brother or sister will be a precious gift, but not a replacement. Even in that upcoming joy – you will always be missing from our lives on Earth.

I also got the chance to visit with another friend named Erin. She and I have been friends 18 years this year. That’s a very long time, especially considering I only had you for 6.5 months. While visiting, I was entertained for the evening by Annakay. AK is almost two and is very sweet. I wish you could have been her friend, just like her mom and I are friends. AK and I danced, put hats on and marched around the house, shared a snack and watched the end of Tarzan together.

I find that being around baby girls and little girls is much harder on me than being around boys. Mostly, I suppose, because they are a constant reminder of what I am missing – you. However, I realized the sharp edges of my broken heart are ever so slowly being smoothed: playing games and dancing with AK warmed my heart and made it feel full for a little while. Though the hole where you belong will never go away, there are small, fleeting moments of pure delight that take my breath away. Even though I cried for you the whole drive home from Erin and AK’s.

Who you would have been, how you would have looked as you grew, what we would have played…I still dream of those things. But I know you are doing all those things in Heaven.

I am grateful for the strength to get out of bed each day and live here without you.

I love you.

xoxo,

Mom

P.S. Sweet girl, you’ve been in Heaven for 12 weeks today. How we miss you, Joanna.