The Pep Talk[s]

Friday will mark five months since we lost Joanna. Five months is a long time. But daily I am surprised by my constant anxiety levels. I am anxious about running into someone who knew I was pregnant but does not know that Joanna died.

If I look back to a few months ago, I can see that the issue used to be worse than it is now. I will admit. I would sit in the car at Wegmans and cry. I would will myself to go inside. My heart would pound. My palms were sweaty. Once I could collect myself, I would run into the store and back out without saying a word to anyone. Mostly, though, I would just have Bill get anything I needed so I didn’t have to put myself through that torture.

Now, I sit in the car and give myself a pep talk – the “you can do this, Carol; you’re brave and you’re strong and you’re capable of telling people what happened if you do run into someone who doesn’t know.” So I go inside, even though I feel like most of what I said to myself is a lie.

If you’re brave, why are you panicking? If you’re strong, why are you shaking?

Once I arrive inside, I beeline it to the items I need. I avoid eye contact with anyone I know who I am worried may not know Joanna’s story, so as to not start a conversation. Once I grab what I need, I stealthily make my way through the aisles, attempting to run into exactly zero familiar faces, just in case. Once I finally arrive back to the front of the store, I find a line with a cashier I do not know. I smile and politely say “hello” all the while wishing the cashier could move faster so that I can leave before someone sees me.

I thought by now this would no longer be an issue. But every day I wake up and have to give myself the same pep talk: OK, Carol. You can do today.

Then, once I’ve talked myself into leaving the house, there’s the car pep talk. Moment-to-moment I have to tell myself that I can; tell myself not to turn around and go home.

The third pep talk is for once I have arrived at my destination: You won’t run into anyone at this point who doesn’t know. It’s fine. You need to make it through. Carol, you can do this. It’s just [the grocery store, church, so-and-so’s house]. Even if you have to be brave and tell someone Joanna has died, you’ll be OK. Everyone has to find out eventually. OK. Here we go.

But sometimes the pep talk isn’t enough, and I do run into someone who doesn’t know. Yesterday, this happened. My first reaction was to run away. My brain got jumbled and all the things I thought I wanted to say in the situation were gone. I was embarrassed. I was awkward. I didn’t know what to do. I quickly said something that I didn’t want to say, that was not my rehearsed, eloquent answer, turned around and left. Back in the car, I fought the tears. My heart was pounding. My palms were sweaty. I just wanted to go home and go to bed. But instead, another pep talk.

You survived. It wasn’t what you planned. You were embarrassed but you got out and didn’t have to linger. You’re OK and you’re going to complete your plans for this day. You will not go home and hide.

And so I didn’t. Good talk. [Repeat tomorrow.]

I’ve been trying to pinpoint why I am so anxious. Today I was talking to Bill about it and I think it comes down to the “embarrassed” part. It always comes back to this — it was not my fault. I did nothing wrong. I know, I know. But here’s the truth: even so, somehow, I am ashamed. I am embarrassed, sad, brokenhearted to have to tell people that my body failed my baby.

That I could not save her.

No pep talk can make me feel better about that.

Someone Said Her Name

Bill and I talk about Joanna and we use her name often. She is the most spectacular thing that has happened to us in our lives so far and we daily acknowledge her as our first born, as our baby girl.

We also love it when others talk about her or ask us questions and call her by her name. To know that others recognize her as our baby, not just “the child who died” is so special and appreciated.

Such a sweet name, Joanna Rose.

Yesterday I went to see a movie with a friend. As we walked up to the concessions counter, a woman and her young daughter came in who were meeting up with a small group of their friends. The group was to our left and from behind us I heard the mom say, “I see Joanna!”

Instant trigger. I felt the tears immediately jump to my eyes. My stomach dropped. I looked at my friend and said, “That has never happened before.” I begged the tears not to spill over and did not look to my left to try to determine who this “other” Joanna was…

I have never met or bumped into anyone named Joanna before. This was the first time since our Joanna died that I have heard the name used for anyone else. It caught me off guard.

I’m not sure what was worse. To hear someone say her name but not to or about her, or to know there was a little girl next to me named Joanna who is going to get to do all the things our Joanna won’t.

It’s truly amazing how grief can just open wide in an instant. The night before Mother’s Day was the first time I had cried myself to sleep in a while. This is because I’m slowly getting to the point where I know for a fact that this is not just a nightmare. I will not wake up and have my baby back. I’ve begun to accept it, to live with the knowledge and try to live a life my daughter would be proud of. I’ve been trying my best to sleep without the help of a sleep aid. I no longer take Elephant with me everywhere I go. I am finally feeling some healing. Then boom — right back into the thick of it.

Just a stranger who said her name.

Oh, how my heart is hurting today.

Dear Joanna (4.27.15)

Dear Joanna,

I am flying to California as I write this. Actually, I’m probably already over California right now.

The last time I came here I had you! You were a tiny little bean, just six weeks along. During the trip all I wanted to eat was guacamole. Plus, I started to get morning sickness, but only in the evenings.

Maybe the best part of my trip was that by the end of it, I was the “most pregnant” I had ever been. Coming home from California and being almost seven weeks was a relief. It was a milestone for us, since before you, we lost a baby right around the six-week mark. You were still with us. You were still growing.

Sometimes I wonder, when there is another baby…will we feel relief when we make it to 26 weeks? 25 weeks and 5 days was when we found out you had gone to heaven already. I think there won’t be any relief until your brother or sister is in our arms, crying, full of life!

If you had not left us, I would not be going to California today. But somehow this trip feels like the start of a new journey. One that will be scary but one that your dad and I are willing to make.  I’m glad you’ll be with us every step, in our hearts and minds.

Love you, baby girl!

Mom

TTC, BBT, PCOS?!

A year ago today I was pregnant. 6 days earlier I had gotten the first positive pregnancy test of my life. It was the most exciting and wonderful time. 

We had been trying to conceive (TTC) for almost 18 months and couldn’t believe we were finally going to be parents. We had told my parents the day after we found out, because as luck would have it they were with us that same weekend. 

Because it was taking so long to conceive and because I was taking my basal body temperature (BBT) and knew I wasn’t ovulating most months, it was really quite a shock!

That week was sweet and scary. Knowing there was a baby was exciting. But I was also feeling like something was not right. Like I was cramping. Like this baby was not to be born. 

Upon first check of my beta levels, I was definitely pregnant. The second check didn’t look promising and then the bleeding started. 

A year ago tomorrow. No longer pregnant.

That first loss was so hard to handle. Thankfully some of our best friends came to town that weekend and were with us as our hearts were breaking. 

This loss pushed us to see a reproductive endocrinologist (ER) – the fertility doctor. He actually said that everything looked really healthy but did diagnose me with PCOS. This confirmed my suspicions since I already knew I wasn’t ovulating regularly. 

The ER gave us options. Try on our own for a few more months but add metformin to help sustain a pregnancy, use mild fertility drugs to induce ovulation or use mild fertility drugs plus IUI. Because my health insurance didn’t cover any treatment, we opted to add metformin and wait it out a few more months. 

Somehow we conceived Joanna naturally. I wasn’t even a week into starting the metformin. A miracle at just around the two year mark of TTC. 

And now, here we are again. Hoping for miracles as we think about our next TTC journey. Will it take another 18 months to give Joanna a sibling?

It’s National Infertility Awareness Week…so on this first anniversary of my first loss, I just wanted to share a little more of our story. 

Dear Joanna (4.21.15)

Dear Joanna,

I wanted to pop in and say that I miss you.

I was driving to work from the dentist today and burst into tears. I know…it’s still happening. And I’m not ashamed. My tears for you will always come, and they will always feel right, even though not having you feels so wrong.

Why did I cry, you ask? Because as I was listening to the radio, a song came on called What Hurts the Most. I am sure you heard it before, from inside my belly. It’s about a break up, a great heart ache. About a man who so wishes he had said what he was feeling and acted upon his love for his girlfriend. But he didn’t and she left. He lost her forever. Though you didn’t leave by choice and though I never neglected to tell you how much I love you, I can relate.

I can take a few tears now and then and just let ’em out.
I’m not afraid to cry every once in a while
even though going on with you gone still upsets me.
There are days every now and again I pretend I’m ok,
but that’s not what gets me.
What hurts the most was being so close,
and having so much to say…
And never knowing what could have been.

I also cried because the last time I was at the dentist there was so much joy! I was finally telling everyone that I was expecting you. I scheduled my 6-month cleaning and was already celebrating that you would be here, that I would have a little baby to bring along with me to the dentist, all cute and adorable in your little car seat.

But it was not to be, Joanna.

My arms felt so empty on Saturday morning that I held Elephant close and swayed in the sunlight for a while. I wish you were here, cuddling Elephant, and that I could cuddle you in the sunlight. Sweet girl, you’re one of my greatest loves, and losing you is my greatest hurt – what hurts the most.

Hugs and kisses, beautiful!

xoxo,

Mom

Pretty in Pink [A Celebration of Life]

These past few days I have had a lot of trouble thinking about what to say, which is why I haven’t posted in a while. So here goes nothing…

Easter weekend was pretty hard for me. I was surrounded by so many of the people I love. It was a beautiful weekend of joy and celebration. But at the same time, it was devastating. Thinking that I probably shouldn’t even have been up in PA, considering that Joanna could have been born early. Or, better yet, that she was growing and healthy and happy right up until 40 weeks: Tuesday. Which would have meant I couldn’t have traveled so far away for Easter. Those are the things I think of when I’m alone, when I’m in bed trying to fall asleep, when I’m driving in my car… If only things were different.

Speaking of 40 weeks, Tuesday on my due date we had a celebration of Joanna’s life. We decided to plant a winterberry bush in our backyard. It will get bright red berries in December (her birthday) and will have bright green leaves most of the rest of the year (that come out in Spring, around her due date). Prior to the evening of our celebration, we invited friends and family from afar to write “Dear Joanna” letters on tags that I designed and printed on light pink card stock. Then, local friends (and my mom and Aunt Barb) came over for a potluck dinner Tuesday. April 7. We hung all the mailed-in tags and the friends who could attend the celebration filled out tags and hung them as well.

We had wanted to plant the winterberry and hang the tags outside, but the weather was not cooperating. I was pretty upset at first. Something came out of my mouth in the car on my way home from work that sounded like, “God, You get to have Joanna, can’t I at least have nice weather for our memorial?” And it came out in a loud, angry yell. It was certainly a low moment for me, though anger is a common emotion for me to feel when I think about losing Joanna. Regardless, I felt better after saying what I was truly feeling, and a bit of peace washed over me, like God was answering me, “You carry Joanna in your heart, you celebrate her life every day, the weather can’t change that, or how much you love her.” And so I went home, put the tree in the house like a Christmas tree and we celebrated. It was beautiful. The pink really popped, plus we had pink tulips and pink balloons.

Love Mom

I feel so blessed to have so many family members and friends who joined us in celebrating, near and far. I am so grateful for their thoughts and prayers and support during the past three months. There is no doubt in my mind how loved Joanna was and still is – and no doubt that Bill and I are loved, as well.

Proud Parents

A final thought…I feel like making it to my due date and surviving this time is a huge relief to me. Every week I thought about how far along I would be in my pregnancy and what that would mean for us. And now, I am not counting down to the day when my baby would NOT be born. It has passed. I am here. Breathing. Sure, I will think of all those milestones we are missing as the rest of the Spring babies are born. I will be happy and sad all at the same time to see new pictures of those babies on Facebook and even meet some of them once their parents bring them home and are settled. But now, we’ve made it. Now, we look back with love and sorrow all at once. But now we also look forward – and try to hold on to hope that someday there will be a baby brother or sister for Joanna. We look in our hearts and we find her there.

Dear Joanna (4.3.15)

Dear Joanna,

I want to tell you something. Just know it is not your fault. It’s not mine either. Though it’s always hard to believe that. 

I am feeling left behind. 

Sometimes I feel bad feeling that way. I know I have friends who wish they were married and feel left behind. And I have friends who wish they could buy a house and feel left behind. Of course I have friends who don’t have children yet and probably feel left behind as well.

Still, I feel left behind because I don’t have you. All of your dad’s siblings have children. My brother has a son. Many of my friends who married after me, or are not married at all, are having children. Or even just friends who are younger than me. I thought it was my turn – our turn. Your dad and me.

We thought we were going to join the new parent club when you were born. While we did join a parent club, it’s not quite the same. Being part of the bereaved parent club…it’s one no one wants to join.

We thought you would be our Rainbow Baby, the baby who is born after a loss. But now, you’re another Glory Baby. Another precious life not living here with us, but in Heaven. 

But speaking of rainbows, your dad and I saw a rainbow today on our way home to Pennsylvania. We saw a few rainbows the summer we found out we were pregnant with you! This was the first I’ve seen since you left us and I want to believe it was sent our way to remind us you’re with Jesus on this weekend where we celebrate Him and His resurrection and our salvation.

Maybe, it’s even a sign to remind me, on the weekend before your due date, that there is hope of another baby – a sibling for you. Our Rainbow Baby. 

This weekend will soon be over. Your due date will soon pass. But I will still feel left behind… Behind you, already in Heaven. Someday, we will meet again. 

I love you, sweet girl!

Love,

Mom

  

Calendar Moments

Today after work I let the dog out, as usual. I stood in the fading sun at the sliding glass door and watched him run around. I think, someday, he would have loved running around with Joanna.

When he ran around the corner out of sight, I moved over and looked at the calendar. I picked up my Sharpie pen and started adding. “Bill to Rochester” for a week. “Carol to SoCal” for a week. “Mom and Dad Overnight” one weekend in April. “Emily’s Bridal Shower,” “Amber in Town”.

As I added these things to the calendar I realized that the big trips I was writing down would not be happening if Joanna had been born [alive] when she was due, April 7. Bill couldn’t have left for Rochester a week after her birth. I would not be going to California for work, since I wouldn’t even be working.

The smaller visits would still have happened. My parents would still have come visit, and even Amber would still be coming! But they would have been coming to meet and visit with Joanna. I am happy they are still coming to see me, I’m sad that Joanna is not here to snuggle and shower with love and kisses.

While I am going to look forward to California for the next few weeks, and I am sure I will have a good time with my co-workers and hopefully see the Pacific again, I will be wishing for a different scenario. While Bill is in Rochester I will be wishing he were with me, with us – our little family of three (ok, four, counting Heinz).

The calendar reminds us that our lives do continue on, they must. We cannot stop time; change; things out of our control. We can only remember what has been, and try to look at the future with hope.

It’s still easier to just not look.

A Breath of Fresh Air

Jane Austen once wrote, “Friendship is certainly the finest balm for the pangs of disappointed love.”

While she was writing of romantic love, I have found a lot of meaning to this quote in the disappointment that is pregnancy loss, that is a mother losing her child.

When we miscarried our first baby, I cried for days. How could we have waited so long for a child and struggled with fertility nearly two years only to be disappointed days later? I was devastated. I was hurting. I felt alone.

But in my time of pain and sorrow, friends who had experienced the same kind of loss were there for me. From my mom, to my sister-in-law, to friends far and wide who had lost one, two, or more pregnancies. Their kind words and encouragement and shared experiences helped to ease the heartache and bring some hope back into my life.

When we miraculously conceived Joanna only 3 months later it seemed like she was going to be our rainbow baby. Flash forward nearly 26 weeks. When a doctor tells you, “There’s no heartbeat,” it literally breaks your heart. I say literally because you feel it inside your chest ripping in two and then it crashes to the pit of your stomach into smaller pieces. Heartbreak really does physically manifest as chest pain, among other things.

I cried every day for months. I still cry most days. But the outpouring of love and support and prayers from our friends and family has been what helps us get by. One day at a time. Or more accurately, one moment at a time.

Over the weekend I had the chance to visit a friend. A dear, sweet friend. It had been a long time since I had seen her; we hadn’t seen each other the whole time I was pregnant. She has not experienced the same kind of loss, but this deep, precious connection that we have had for so many years – it was the balm I needed. Her sweet cards and consistent phone calls and texts have been coming to me on the days I have needed them most. Yet there is no comparison to seeing a dear friend in person when your heart is aching. There is nothing like a familiar hug from one whose heart is as broken as yours, for you. Friendship is, itself, a healer. A ray of light and breath of fresh air in a dark and saddened place. A glimmer of hope when all feels lost.

I praise God in all things, even the most devastating times. And I thank Him daily for the blessing of friendship, the balm of the brokenhearted.

Dear Joanna (3.23.15)

Dear Joanna,

I went home to PA to visit family and friends this weekend. You would have liked it there. The weather was pretty mild, though of course it snowed on the first day of spring. It would have been fun to take you there in the winter to go sled riding. And in the spring to celebrate Easter and your cousin Shay’s birthday. Summer would have been fun, going to Waterford Days and stopping for a nice visit at your Pap’s camp so your daddy could show you off to his family. The fall is great too – cool temperatures and beautiful leaves. You would have grown up looking forward to those visits up north, just as your dad and I look forward to them.

This trip was pretty special. I got to meet little baby Annabelle. She is only a few weeks old and her mama, Erin, and I liked to share baby bump photos while we were both pregnant. I took her some breakfast and we got to share labor and delivery stories, though there was but one baby to hold. I wish there were two; I wish one was you. For most of the visit I just looked – I watched as AB lounged quietly while her mom and I talked. I looked on as Erin breastfed her, changed her diaper, redressed her. Toward the end of my visit I decided to hold her. She was much heavier than you, but still felt so tiny. She was warm and smelled like babies smell, so sweet and clean. And as I cuddled her on my chest, I wished for you.

Joanna, no one can replace you or fill this hole. Holding AB was priceless, so special, even healing. It helped me remember that all babies are precious and all babies are miracles, even if they aren’t mine. But there is just one you. So someday when your dad and I decide that we’ll have another baby, we know that your brother or sister will be a precious gift, but not a replacement. Even in that upcoming joy – you will always be missing from our lives on Earth.

I also got the chance to visit with another friend named Erin. She and I have been friends 18 years this year. That’s a very long time, especially considering I only had you for 6.5 months. While visiting, I was entertained for the evening by Annakay. AK is almost two and is very sweet. I wish you could have been her friend, just like her mom and I are friends. AK and I danced, put hats on and marched around the house, shared a snack and watched the end of Tarzan together.

I find that being around baby girls and little girls is much harder on me than being around boys. Mostly, I suppose, because they are a constant reminder of what I am missing – you. However, I realized the sharp edges of my broken heart are ever so slowly being smoothed: playing games and dancing with AK warmed my heart and made it feel full for a little while. Though the hole where you belong will never go away, there are small, fleeting moments of pure delight that take my breath away. Even though I cried for you the whole drive home from Erin and AK’s.

Who you would have been, how you would have looked as you grew, what we would have played…I still dream of those things. But I know you are doing all those things in Heaven.

I am grateful for the strength to get out of bed each day and live here without you.

I love you.

xoxo,

Mom

P.S. Sweet girl, you’ve been in Heaven for 12 weeks today. How we miss you, Joanna.